Milestones

Another week, another round of appointments.  I don't know if these appointments are getting easier or if I've just completely accepted that I will be doing a lot of this for the rest of my days.  Yes, getting to and from can sometimes [most of the time] be problematic with silly scenarios that I [have a knack for] seem to get into.  Lately I've been letting it all roll off me, which is made a lot easier as the news in these appointments has continued to be very encouraging. 

Monday morning was our follow up with the Neonatal clinic at the hospital.  Premature and underweight babies are at high risk for developmental delay so naturally Zoe was referred.  I initially thought the appointment was for both of them, but after an awkward few minutes at the desk I was informed that they don't follow Down Syndrome babies (they leave that up to Infant and Child Development).  Zoe had an appointment to herself for the first time since her surgery.  This was her official 4 month (corrected) visit.

The first little bit was typical:  weigh her in, measure and report.  According to the scale there, she weighed 13 lbs, 4 oz which I think is a bit more than she actually does (they left her dress on, so that could have added a few ounces).  Then it was meeting with the OT (Occupational Therapist) who laid her on the floor and checked out her development.

According to the Nippissing District Developmental Screening Tool, at four months of age a child should be able to do the following:

• Turn their head from side to side to follow a toy
• Glance from one object to another
• Turn [their] head towards a source of sound
• Make some sounds when looking at toys or people
• Brighten to sound, especially to people's voices
• Respond to you by making sounds and moving arms and legs
• Laugh and smile
• Finish each feeding within 45 minutes
• Lift [their] head and support self on forearms
• Bring both hands to chest and keep head in mid-line while lying on back
• Hold head steady when supported in a sitting position (ie:  in an infant chair or on your lap)
• Hold an object briefly when placed in their hand.

(© NDDS Intellectual Property Association, all rights reserved). 

Now, according to the OT, Zoe is scoring in the 50th percentile for her real age, not her corrected one; she can do this list and so much more (roll to her stomach, roll back to her back, hold objects in both hands, etc).  This is fabulous news... albeit not terribly surprising, given "The Princess" (as dubbed by the NICU nurses) has always been a superstar.

Yes, I can multitask.  I learned it from my Mommy...

The Neonatologist was simply enamored with her which also isn't too surprising as she is a real flirt when she is not screaming.  After a few physical checks (heart, lungs, eyes, ears, fontanel), he was done and so were we and we received our next appointment for late November.  We spent the rest of our time at the hospital visiting with Mommy's colleagues where both babies were held and snuggled by all.  Quinn didn't do too badly as well... he scored some Timbits and covered the office in original artwork.

...And on the way home I stopped traffic.  Yes, you read that right. What would a "doctor adventure" be without the "adventure" part?

When we had left in the morning it had just stopped raining;  it was quite possibly the first rain we'd had in a month.  The stroller was packed with rain gear: stroller cover, giant umbrella, a rain coat for Quinn.  At some point while we were inside the skies had cleared and the sun had decided to beat down once again.  I cursed myself for leaving my sunglasses at home and forayed out into the blinding light.  We were almost panting by the time we reached the bus stop and there was no shade to be found as the sun was almost directly overhead.  By the time the bus came we were already very hot and in need of something cold to drink.  I told myself that when we reached our connection if there was a wait we would go into a nearby store and get a drink, which we did, to cool off and kill a little time.  Once we left the store I started cursing as I realized that the curbs and sidewalks on all four corners of the street were torn up.  Our bus stop was missing in fact.  Damn and blast!  How were we supposed to get home?

I ignored the "use other sidewalk" signs as the bus I needed drove on this side of the street.  I deked up into a handy driveway to hopefully cut through... and found fences everywhere.  We were trapped.  I had two choices:  1) walk back to the "corner", cross the street, walk two blocks down the street, cross and walk back up to the nearest stop or 2) improvise.  I was also wearing strappy slip on sandals with a two inch heel that sounded like a good idea in the morning, but now were rubbing the skin off my feet as they swelled in the heat.  Vanity, thy name is pedicure.

We chose option #2.  Traffic had been reduced to one lane as there was an enormous digger currently gouging out the existing sidewalk and dumping the refuse into an equally enormous dump truck.  At a safe distance from these behemoths was a middle aged [read:  older than me] woman holding a slow/stop sign.  I chose to walk right up to her through a cordoned off area and ask her where the bus stop on this side of the street had gone (it was missing too).  She motioned and yelled something about a block ahead of where we were standing. I could barely hear her over the machines but eventually I made out that she was asking how old the twins were.  I let her know, she looked at each of them lovingly while Quinn stood, mouth agape watching the metal dinosaurs claw at the earth.  I had to interrupt her momentarily to ask her how I was going to get there and she smiled and answered "Well, I'm going to stop traffic for you".

So she did.  She stepped forward, expertly held out her hand and swung that sign around to "STOP" so that I could push the stroller (and Quinn) to the nearest bit of unmolested sidewalk.  On Main Street. In the middle of the afternoon.  It was crazy!  I sauntered down the middle of the road, the divider a foot or two to my left, past the giant machines (I have to admit I was a little spooked) and safely onto the sidewalk... a trip that had to take at least a full minute.  I could feel the traffic building up behind me and knew it had to be solid cars halfway to Orangeville.  I got to the sidewalk, flashed her a thumbs up and traffic started again.  I wasn't paying attention but I am sure I got more than one dirty look.  We opted to walk home from there;  it was a hot one broken only by a few shady spots which we took advantage of.  When Sean came home I regaled him with this story only to have him say "It's a good thing you had that giant umbrella with you for shade!"  Yeah.  Good thing.  (Dammit!)

Wednesday was a big day for both babies as we followed up with the pediatrician. Zoe weighed in (naked this time) at 12 lbs 14 oz and Wyatt a cool 12 lbs 9 oz.  Our mighty Micro-me has finally surpassed her moose of a brother (which is not surprising due to his hypotonia). They are exactly the same length,  58 cm (or almost 23') which is two centimeters more than Quinn was at birth.  (No wonder I needed that section!) According to the charts, Zoe started her life in the 5th percentile and has now moved up to the 25th. Wyatt remains in the 5th percentile.  At our last visit I asked how Wyatt was doing on the DS growth charts and was answered with "I wasn't aware there were such charts".  You'll permit me the mental high-five I gave myself when she added "...but he is at the 25th percentile on the Down Syndrome Chart" this time.  Score one for Advocate Mommy!

She was quite pleased at their progress over all.  Zoe was in a bit of a playful mood and when she tired of rolling to her side and scrabbling to get the box of wipes, she started going after the paper on the table.  Even as I was pulling her away she continued to frantically grab at it with both her chubby mitts and try to eat it.  It was hysterical.  I had to hold her for the rest of the appointment (which was fine as she is content looking around).  When I put her down to change her she rolled over and tried to crawl to the paper mess again.  Our pediatrician was amazed and remarked that it was very unusual in a preemie that age to be so mobile and it was a testimony to the amount of floor time and the kind of stimulation they got.  (Mental high-five number two!  Yay!) 

"Globally delayed"?  I didn't get THAT memo...

We also got the official go-ahead to stop the formula top-up (oh thank you!).  It isn't as easy as just cutting it out at this stage however;  I have to taper everything.  First will be a week of top up with formula in every other bottle, then a period of every other feed having EBM only top up and then taking it from there.  I'm still going to have to pump to make sure that the supply isn't impacted either.  I may never be able to stop pumping after a feed, but time will tell.

That particular trip home was easy as Sean picked us all up.  I got to tell him how awesome all the kids were, including Quinn who patiently sat through yet another appointment and carefully wrote down everyone's weight and measurements.  It was a stark contrast to the outburst he had before the appointment (where he threw a fit and refused to go).  He's growing up too...

I know not all of our appointments are going to end so well.  There will be a point in the future where Wyatt will have his AVSD operated on.  However, I hope that we will continue to have good news and be validated by their development and good health.  I am aware that we may be "honeymooning" with the twins right now and that is okay.  With my return to work date coming fast I feel that we deserve this time together.  That is okay too.  We are moving forward, all of us as a family and meeting our own various milestones.  Right now everything, dare I say it, seems to be all right. Wyatt is just Wyatt and his DS is just something he has, like his blue eyes.  It doesn't define him, or his sister.  Or us either.  It simply is.

That, ladies and gentleman, is a milestone unto itself.  At least for me.

So There Ought to Be

It has been a week of firsts with my family.  Some were better than others, some were simply fantastic.  With our twins, especially Wyatt, we have learned to see even the smallest milestones for what they are:  wondrous little victories.

We started out last Friday with our first big road trip with the babies.  As I have mentioned numerous times before, going anywhere with these babies is quite an undertaking.  With one baby, you have to pack up his or her room... with two babies, you have to pack up most of the house.  We tested the limits of our cargo space last weekend and I have to admit a begrudging acceptance of the Whaaambulance.  Two babies, three days.  Aside from our suitcase and Quinn's bag, bike and bag of toys we had the following:  two baby swings, two bouncy chairs, two bumbos, diapers for two (half a bag), wipes, two bags of blankets (one with receiving blanket/burp cloths/towels and one with heavy quilts),  a bag of baby toys, bottles, pump, nursing pillow, formula powder, sterilizer and a rolling carry-on full of baby clothes. I had a cooler full of bottles and a frozen stash of EBM.  I took my own bottle brush, drain tray and dish soap for the bottles.  I took my own laundry detergent in case I had to wash baby clothes.  It was nuts! Luckily they had a play pen there so that saved us another bulky item.  The only things that didn't get used were the bumbos, the dish soap (they didn't use antibacterial) and the laundry detergent (I washed everything when we got home).  Everything else was used at least once. 

Aside from the supply truck that you need with the twin road trip, there is also the set up and the implementation.  By now we have a pretty set routine around here;  where we keep the supplies, where we change and feed, where we do everything.  I have diaper stations and supplies on every floor of the house and set places that I keep things... now I had to figure that out somewhere else.  I tried to keep from descending on the in-laws like a swarm of locusts but some things could not be helped.  It is busy with twins;  there is always something that you have to be doing. Unlike at my house where I can and do leave dirty bottles in water in the sink for hours on end (to save time... I do the wash up once or twice a day), you can't do this elsewhere.  I was constantly washing and cleaning up something.  Plus I eat like a horse and drink copious amounts even when it is not hot... My five year old was running around wild as it was someplace new and hubby and I were snapping at each other as we couldn't find things.  The temperature soared, the babies didn't sleep very well and Zoe screamed a lot.  I'm sure we were the guests from hell.  Despite all of that, we did have a good time.

We also went to a family reunion where we had a great time.  I was so busy catching up and visiting that I didn't even think of getting out the camera until it was too late.  There was a group shot taken of everyone there so I look forward to seeing that.  It was very hot, but we visited with lots of good people and had a lot of good food.  Baby wrangling is a lot easier when others want to hold them.  :)

High maintanence?  Us?

We also received some handouts from Infant and Child Development to help Wyatt strengthen his muscles and develop.  They aren't as much exercises as positions to place him in to play.  Most are ways that we hold him to begin with, so that was a bit validating.  Each has a list of things to encourage, a list of what this particular position helps to do and play ideas for when you are doing each one. We've started consciously adding them into our day as much as possible.

Sizing up the O-pponent (before exercising with the O-Ball)

Our other firsts this week belong to Wyatt who can now roll over AND giggle.  I missed the very first roll as I found him on his tummy, but eventually I saw him do it.  Zoe is an old pro and lands in perfect position with her head up (not bad for two weeks practice),

Rolling Zoe

but Wyatt is still trying to steady his noggin. One day...

Keep on Rollin' Wyatt!

The first giggle totally caught me by surprise last night.  Sean was bathing Zoe and I was playing with Wyatt in the crib.  Since he is so flexible and we are encouraging him to grab his feet, I had his legs and was playing with his feet.  I tapped his nose with his big toes and he smiled.  I put one of his feet on either side of his face;  the smile got wider and there it was, the cutest "ahuh huh hee hee".  I squeaked and ran to tell Sean, tears in my eyes.  I guess I freaked him out as I couldn't get him to do it again, but I look forward to many more giggles with my little man.

Every new first with a baby is magical.  Every new first with twins is doubly so as you get to see it repeated at a later time and in a slightly different way.  We have the added little extra of seeing it repeated in the DS way.  I have always wanted a house filled with laughter and I believe we are well on our way of achieving that little victory as well.  After all, these are the things that matter most;  the little milestones that not only bring us closer to our goals, but also to each other in our journey.  Although each new little thing means my babies are growing up, our discovery of new things together brings us together with much wonderment and joy.  If that is not magic, I don't know what is.

"When the first baby laughed for the first time, the laugh broke into a thousand pieces and they all went skipping about, and that was the beginning of fairies. And now when every new baby is born its first laugh becomes a fairy. So there ought to be." -- James Matthew Barrie

The Upside of Down

It is only Thursday and I am pooped.  It has been a very busy week so far (and will continue to be so), but we have had a few nagging questions addressed. I am happy to report that these answers have brought a lot of relief and comfort.

As I mentioned previously,  Our worker from Infant and Child Development Services came Monday morning.  Their workers come from a variety of backgrounds including ECE, Psychology, OT, Nursing... ours comes from an ECE and Developmental Psychology background, which suited me fine. She came in, introduced herself... and spent over two hours chatting with me and playing with the babies on the floor.  It was great.  Quinn was in fine form as well;  when he heard that she had arrived, he hurried to get dressed.  Unfortunately, he missed the pile of clothes that I had left on his bed for him (shorts and a t shirt as it was going to be a very hot day).  Instead, he came down in brown track pants and a light coloured pullover with a collar on backwards.  He came right up to us on the floor and sweetly announced "Hi, I'm Quinn" while wearing what looked like a straitjacket. That's m'boy.  She didn't bat an eye... I guess she was too busy gazing into his.  I sent my little lunatic upstairs to change and we got on with the assessment which was only occasionally punctuated by an off the wall [to us] but perfectly pertinent [to him] statement or question.

The whole conversation, like my brain, was very tangential and informal. It totally centered around what the kids were doing.  Both babies were awake and alert and ready to show their stuff.

Listen... they're talking about us again...

Wyatt's head is getting a little more steady every day, which is very encouraging.  "A."  was happy that Zoe could push herself up on her forearms and showed me a little trick to help them master it.  Overall she was very pleased with Wyatt's development;  she remarked on a few things, including his vocalizations, his mouth shapes during these vocalizations and his ability to track by sound and sight.  He also reaches well for things.  A. continued by listing off a few things that I can do to help both of them improve and I was very happy to hear they were things that I was already doing.  Little things such as ankle/wrist rattles, using the dangling toys on the Gymini-jillikers (Gymini play mat), the simple toys I was using, talking to them, imitating their sounds, changing their environment, introducing texture, playing music for them, singing and so on.  We talked about their delivery, Wyatt's diagnosis, their stay in the NICU and how we managed that... even Zoe's surgery.  She was amazed that a) I managed to make it to Mother Goose at all and b) how I was "handling" everything.  Sometimes you have to have things pointed out to you and I am no exception.  I guess our story is a little incredible if you think about it.  A. made a point of relaying how well she thought Team Logan worked together and how well we have dealt with our roller coaster lives over the last two years or so.  I told her that all you can do is laugh sometimes, and cited the dishwasher (which died a horrible leaky death the night before).  What are you going to do?  That's life.

Many of our questions were finally answered.  Infant and Child Development Services sets you up with whatever extended services you might need, such as OT, speech therapists, etc.  Usually, speech therapy and the like start after 1 year of age.  The idea being that you assess where the child is with their speech, etc at that time and then intervene appropriately.  We talked about Wyatt's physical health and swimming was discussed.  I was surprised that they don't recommend exersaucers and jolly-jumpers and the like, but she went on to say that many parents leave their children in them for hours at a time where they are standing on their toes and that interferes with proper leg and foot development.  She did add that 10 or 15 mins here and there would be fine and would be helpful, but no more.  A. went on to say that the best place for them would be just as I had them, on the floor, where they could grow and stretch and build their muscles in a more natural way. 

ICDSP also has a ton of resources for us to utilize:  They have toy and book/video libraries, will and estate planning, evaluating eligibility for and setting up government funding, groups and programs tailored for your needs... and the list goes on.  They will also be involved before Wyatt starts school;  the spring before he starts JK, we (A, the OT, any other development specialists, the teacher, the principal and Sean and myself) will all meet and discuss exactly what his needs are and whether or not he will need additional support in the classroom.  I guess at the time we will also discuss whether our school separates twins or not, but that is another issue.  Even though I knew that he would be going to regular classes like a regular kid, for some reason hearing it from this woman made me relax a little.  I don't know why... perhaps, once again, a small amount of validation can go a long way.  She will be visiting us monthly for the first while to assess his continuing development, which I was also pleased to hear.  I found the whole experience to be extremely positive;  Wyatt's doing well, we are doing well and we are doing the right things for him.  I don't think it gets better than that.

That night we took them to our GP for their 4 month shots.  I'm not so sure of their scale to be honest, but according to it, Zoe weighs 12 lbs, 6 oz and Wyatt weighs 12 lbs.  Zoe has officially beaten her brother in the weight department (you can chalk that up to the muscle tone).  Our Family Doctor was pleased overall with their progress and gave them a shot in each thigh.  I had Sean hold them down... I couldn't bear to do that again.  They were reasonable that night, but were feverish yesterday...  light to no clothes and Tylenol seems to have taken care of that for us.

Tuesday we had a trip to the cardiologist and once again, the kids were on.  I really do like going there as everyone is so friendly and very helpful.  We didn't have to sedate Wyatt (which is always a relief) and it was such a pleasure to watch the babies interact with the staff.  There were a few awkward spots especially when Zoe started crying right when we were doing an echo on Wyatt, but one of the staff just walked over and got her to smile as if this happened every day.  Wyatt had his checkup and his echo and the Dr. is so pleased with his progress that we do not have to see him for another 6 months.  Fantastic! 

We had a happy little moment on the way out as well.  Quinn was playing with a new friend in the waiting room and when we were leaving, I was delighted to see that the (younger) boy he was playing with so easily had DS.  I introduced myself to the boy and his mother and talked to Quinn that his new friend had the same condition that Wyatt has.  "But, they don't look the same" was his reply, to which I responded that "G" looked like his family while Wyatt looks like ours.  I don't even think Quinn noticed that his new playmate was non-verbal... they totally "got" each other.  "G"'s mom was very pleased with the interaction and I was too...  as it was just a little heartwarming glimpse into the future.

It is always good to hear good things about your kids, it's even better to be given the reassurance that they are doing well and most importantly that you are doing the right things for them.  Although I think we are pretty good parents and we strive to be the best that we can for our kids, it is good to have that little extra bit of validation.  Armed with that, we can continue on knowing that Wyatt (and all our kids) will be the best that they can be.  We may not be able to predict Wyatt's journey, but his path will take him places... of that I am sure.

Wyatt intently listening to big brother Quinn

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Photo Catch-Up Friday, Part 2.

To say that the garden is neglected this year would be a gross understatement.  With the babies and whatnot, puh-leeze!  The garden's suffering started last year when I found out I was pregnant.  Once the nausea set in, I didn't have the time or the energy to do anything.  Then the weather turned bad and I was unable to save my bulbs from the pots before they froze.  :(  Thankfully, perennials are like good friends; no matter how rough things get, they are always there to brighten your day. 

By the end of April, I had a few spring bulbs flowering, including some jonquils.

Yellow jonquil covered in pollen

On Mother's Day, my family bought me two hanging baskets of fuchsias.

Dewy Fuchsias

But, the yard as a whole needed a LOT of TLC.

Froggy Mama is lost in the weeds [in more ways than one :( ]

It was wonderful to welcome some new additions that my Mom had sent home with us the summer before.

Dwarf Iris

Sweet Violets

Trillium

I love peonies... always have. I love the look, I love the smell. I was very pleased to see that the peonies that I had planted last year came back and bloomed. I have a lovely ruffly pink one that has the classic scent, and a scentless white one. Both are magnificent. I hope to add more as time goes on.

Pink ruffly peony

White ruffled peony

The rosebush has really come back after last year's disaster. The flowers this year vary from the very bright, almost fuschia pink of years past, to a pale pastel.

Pale rosebud

The weigela did very well this spring, although I recently had to give it a [very bad] haircut as it was growing all over the little garden.  I have to get a hedge trimmer to take care of it, along with the dogwood and a few other things.

Weigela Bloom Macro

Just in time for Canada Day, my yellow daylilies bloomed. I love daylilies... you don't have to do much to them and they are immune to the red lily beetle that plagues/destroys my Asian lilies.

Yellow Daylilies

I've planted a small vegetable garden this year:  peppers, two kinds of tomatoes, carrots, peas and cucumbers.  I bought most of the plants (except for the carrots and the peas) and just stuck them in the garden.  I remember to water it occasionally.  :S  That is about the best I can do this year...  I'll post pics of that as I get them.  I also have a pot of calla lilies that is just about to bloom and a few more things that should delight the eye in the weeks to come.

By next year I should be back in gardening mode.  But, for now, I'll enjoy my few ventures outside to wiggle my toes in the [overgrown] grass.  I'm sure there will be something new and pretty to look at.

Photo Catch-Up Friday, Part 1.

Every so often I have to take some time out and catch up on my photos.  The babies are growing and changing so fast and so much has happened in the last couple of weeks... it was either try to catch up now or lose track.

A little over two weeks ago, we went to Sean's Aunt's to meet up with his Grandma and introduce Wyatt and Zoe (and we could wish her a happy 90th birthday).  Wyatt and Grandma made quite a pair, while Zoe... wasn't so amiable. I couldn't get a decent picture of all three of them, but here is a good one of Grandma.

Wyatt and his Great-Grandma

A few days later, I was in the kitchen washing up all the bottles...

How to kill half an hour...

...and I went to check on the babies.  They were napping on a blanket on the living room floor.  I had put them down side by side and they had wiggled around and fallen asleep with Zoe on her side and Wyatt's head in her lap.  It was too much.

So happy together...

I got to sneak around them and take a few more pics as they woke up.  So very cute.  So badly lit, but so very cute.

Little Boy Blue and Pretty in Pink

Canada Day was a lot of fun.  After my Please Mum score of a few days before, I had the kids outfitted in patriotic cuteness.

This of course, was only outdone by Zoe's latest milestone:

Oooh!  Look what I can do!

There was a giant pile of meat and good friends to help us eat:

Giant Meat Pile... *drool*

Good food, good friends

There were two sets of twins (and only one Quinn):

Two sets of twins... and a Quinn

Then, as dusk crept in, they made the night sparkle!

Ty, Erin and Quinn.  The Terror Trio, now with fire!

Fun for all the kids... from 4 months to 40.

My garden, such as it is this year, has a few new friends and a few beautiful old ones.  I will post those later.

Until then... Jxox